Selected Publications and Resources

Recent Refereed Journal Articles

Barbara L. Jones, Ph.D.

Jones, B., Parker-Raley, J., Barczyk, A. (in press, 2011). Adolescent cancer survivors: Identity paradox and the need to belong. Qualitative Health Research.  Doi 10.1177/1049732311404029

Jones, B., Parker-Raley, J., Maxson, T., Brown, C. (in press, 2011). Understanding healthcare professionals views of family presence during pediatric resuscitation: Implications for family-centered care. American Journal of Critical Care.

Jones, B., Volker, D., Vinajeras, Y., Butros, L., Fitchpatrick, C., Rosetto, K. (2010). The meaning of surviving cancer for Latino adolescents and emerging young adults. Cancer Nursing: An International Journal for Cancer Care. 33 (1), 74-81.

Jones, B., Pelletier, W., Decker, C., Barzcyk, A, Dungan, S. (2010). Fathers of children with cancer: a descriptive synthesis of the literature. Social Work in Health Care, 49(5), 458-493.

Wisner, B., Jones, B., Gwin, D. (2010) School-based meditation practices for adolescents: A resource for strengthening self-regulation, emotional coping, and self-esteem. Children & Schools, 32 (3), 150-159

Redelmeier, A., Gilbert, D., & Jones, B. (2010). Stacked Stigma: Oncology Social Workers’ Perceptions of the Lung Cancer Experience. Journal of Psychosocial Oncology. 28 (1), 98-115.

Jones, B., Pomeroy, B, Sampson, M. (2009). University-community partnerships and community based participatory research: One community’s approach to enhance capacity in end-of-life and bereavement practice, research, and education. Journal of Social Work in Palliative and End of Life Care. 5 (1) 94-104.

Shulman, L.N., Jacobs, L.A., Greenfield, S., Jones, B., McCabe, M., Syrjala, K., et al (2009). Cancer Care and Cancer Survivorship Care in the US – Will we be able to care for these patients in the future? Journal of Oncology Practice.5 (3) 119-123.

Jones, B., Parker-Raley, J., Higgerson, R., Christie, L, Legett, S. & Greathouse, J. (2008). Finding the right words: The use of Allow Natural Death (AND) and DNR in pediatric palliative care. Journal of Healthcare Quality. 30 (5) 55-63.

Parker-Raley, J., Jones, B., Maxson, T, (2008). Communicating the death of a child in the emergency department: The negotiation of dialectical tensions. Journal of Healthcare Quality. 30 (5) 20-31.

Jones, B. (2008). Promoting healthy development for adolescent cancer survivors. Journal of Family and Community Health. 31(1S) 861-870.

Jones, B., & Voss, T. (2008). Lesbian parent activism and meaning-making in the current political environment. Journal of Gay and Lesbian Social Services, 19(2), 63-80.

Jones, B., Sampson, M., Greathouse, J., Legett, S., Higgerson, .R. & Christie, L. (2007). Comfort and confidence levels of health care professionals providing pediatric palliative care in the intensive care unit. Journal of Social Work in End-of-Life and Palliative Care. 3 (3). 39-58.

Jones, B. (2006). Caregivers of children with cancer in Journal of Human Behavior and the Social Environment. 14 (1/2), 221-240.

Hutton, N., Jones, B., & Hilden, J. (2006). From cure to palliation: Managing the transition. Child and Adolescent Psychiatric Clinics of North America Pediatric Palliative Medicine. 15 (3) 575-584.

Jones, B. (2006). Companionship, control and compassion: A social work perspective on the needs of children with cancer and their families at the end of life. Journal of Palliative Medicine, 9(3). 774-788.

Jones, B. (2006). Tucked in my heart: The use of ethnopoetry to represent the meaning-making of social workers in pediatric palliative care. Journal of Palliative Medicine, 9 (3). 789-790.

Book Chapters

Jones, B., Remke, S. (2011, in press) Palliative care: The pediatric perspective. In Textbook of Palliative Care Social Work. Oxford University Press.

Csikai, E., Jones, B. (2011, in press) Professional Development: Educational Opportunities and Resources. In Textbook of Palliative Care Social Work. Oxford University Press.

Orloff, S., Jones, B., Ford, K. (2011, in press). Psychosocial needs of children and families. In. Palliative Care for Infants, Children, and Adolescents- A Practical Handbook. John’s Hopkins University Press. Eds: M. Levetown, B. Carter, and S. Friebert.

Jones, B., Gilmer, M.J., Raley, J., Dokken, D., Freyer, D., Sydnor-Greenburg, N. (2011) Parent and sibling relationships and the family experience.  In Textbook of Interdisciplinary Pediatric Palliative Care. Eds: J. Wolfe, B. Sourkes, and P. Hinds. Elsevier Press.

Smith, R., Rossetto, K. Jones, B. (2011) Stigma and Politeness: Challenging Family Health Discussions. In Family communication, connections, and health transitions: Going through this together. Health Communications Series (Volume 1) Ed: M. Miller-Day. Peter Lang Publishers: New York, NY.

Jones, B., Tesh, M. (2010, in press). Children in medical settings. In Children and Grief. Eds: E. Pomeroy and R. Garcia. Lyceum Press.

Levetown, M., Jones, B., Hellsten, M. (2010, in press). Pediatric care: Transitioning goals of care in the ED, ICU and in between. Oxford Textbook of Palliative Nursing. Ed: M. Levetown. Oxford University Press.

Wolfe, J., Hauer, J. Jones, B. (2010). Pediatric palliative care I &II. In UpToDate. American Academy of Pediatrics.

Wolfe, J., Hauer, J. Jones, B. (2010). Evaluation and management of pain in children. In UpToDate. American Academy of Pediatrics.

Hauer, J., Jones, B., Wolfe, J, (2009). Death and Dying in Childhood. In Rudolph’s Pediatrics 22nd edition. McGraw Hill.

Jones, B. Children and health care. (2008). The Encyclopedia of Social Work. 20th Edition. Ed: Mizrahi, T. and Davis, L. Oxford University Press.

Brennan, T., Golant, M., Jones, B., Wiener, L. (2008).Resources and Information. In Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management. Editors: A. Kazak, M.J.Kupst, M.Pao, A.Patenaude and L.Wiener. American Psychosocial Oncology Society.

Jones, B. (2007). Pediatric palliative and end-of-life care: A syllabus for social workers In Teaching Resources for End-of-Life and Palliative Care Courses. Lyceum Books, Inc. Eds: Csikai & Jones.

Jones, B. (2007). Loss and grief: Individual, family, and cultural perspectives. In Teaching Resources for End-of-Life and Palliative Care Courses. Lyceum Books, Inc. Eds: Csikai & Jones.

Jones, B. (2006). Caregivers of children with cancer. In Contemporary Issues of Care. The Haworth Press. R. Greene, Ed.


Csikai, E.L., & Jones, B. (2007). Teaching Resources for End-of-Life and Palliative Care Courses. Lyceum Books, Inc.